机构：[a]Department of Ophthalmology & Vision Sciences, The Hospital for Sick Children, Toronto, Canada[b]Child Health Evaluative Sciences Program, SickKids Research Institute, Toronto, Canada[c]Department of Molecular Genetics, Faculty of Arts & Science, University of Toronto, Toronto, Canada[d]Department of Human Biology Program, Faculty of Arts & Science, University of Toronto, Toronto, Canada[e]Department of Ophthalmology, Beijing Children’s Hospital, Beijing, China临床科室眼科首都医科大学附属北京儿童医院[f]Department of Ophthalmology, Capital Medical University, Beijing, China[g]Department of Statistics, Faculty of Arts & Science, University of Toronto, Toronto, Canada[h]Department of Psychiatry, The Hospital for Sick Children, Toronto, Canada[i]Division of Clinical Public Health, Dalla Lana School of Public Health, University of Toronto, Toronto, Canada[j]Department of Ophthalmology & Vision Sciences, Faculty of Medicine, University of Toronto, Toronto, Canada[k]Department of Human Pathology, College of Health Sciences, University of Nairobi, Nairobi, Kenya[l]Department of Biostatistics, Bioinformatics, and Biomathematics, Georgetown University, Washington, DC, United States.
Objective: To characterize coping and distress among parents of children with retinoblastoma, and to uncover their association with perceived health literacy, self-efficacy, and social support. Methods: This was a cross-sectional study performed in the retinoblastoma clinics of Beijing Children's Hospital, Jilin Eye Hospital and Changchun Hospital in China. Parents of children with retinoblastoma (n = 104) completed a print Mandarin language questionnaire consisting of four sections: (i) demographic information, (ii) mini-mental adjustment to cancer scale, (iii) hospital anxiety and depression scale, and (iv) perceived health literacy, self-efficacy, and social support scales. Scores were tabulated for each measure and analyzed by bivariate correlation. Results: Moderate anxiety affected 59.2% of parents, and 77.7% experienced low, moderate, or high levels of depression. Combined anxiety and depression was positively correlated with helplessness/hopelessness (R = 0.42, p < .01) and anxious preoccupation (R = 0.247, p < .05), and negatively correlated with perceived self-efficacy (R = -0.228, p < .05). Perceived social support from a partner was negatively correlated with depression (R = -0.207, p < .05) and helplessness/hopelessness (R = -0.271, p < .01). Conclusions: Knowledge of how parents cope with their child's cancer diagnosis can help healthcare teams understand how best to support their psychosocial needs.
基金：
Lunenfeld Summer Studentship within the SickKids Summer Research Program; University of Toronto International Health Program (UTIHP) Discovery Fund grant
语种：
外文
被引次数：
WOS：
PubmedID：
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出版当年[2018]版：
无
最新[2023]版：
大类|4 区医学
小类|4 区心理学：社会
第一作者：
第一作者机构：[a]Department of Ophthalmology & Vision Sciences, The Hospital for Sick Children, Toronto, Canada[b]Child Health Evaluative Sciences Program, SickKids Research Institute, Toronto, Canada
共同第一作者：
通讯作者：
通讯机构：[a]Department of Ophthalmology & Vision Sciences, The Hospital for Sick Children, Toronto, Canada[b]Child Health Evaluative Sciences Program, SickKids Research Institute, Toronto, Canada[i]Division of Clinical Public Health, Dalla Lana School of Public Health, University of Toronto, Toronto, Canada[j]Department of Ophthalmology & Vision Sciences, Faculty of Medicine, University of Toronto, Toronto, Canada[k]Department of Human Pathology, College of Health Sciences, University of Nairobi, Nairobi, Kenya[*1]The Hospital for Sick Children, 555 University Ave, Toronto, Ontario M5G 1X8, Canada.
推荐引用方式(GB/T 7714)：
Gelkopf Maxwell J.,Chang Trillium E.,Zhang Yan,et al.Parental coping with retinoblastoma diagnosis[J].JOURNAL OF PSYCHOSOCIAL ONCOLOGY.2019,37(3):319-334.doi:10.1080/07347332.2018.1509165.
APA：
Gelkopf, Maxwell J.,Chang, Trillium E.,Zhang, Yan,Zhang, Chengyue,Yi, Khairi...&Dimaras, Helen.(2019).Parental coping with retinoblastoma diagnosis.JOURNAL OF PSYCHOSOCIAL ONCOLOGY,37,(3)
MLA：
Gelkopf, Maxwell J.,et al."Parental coping with retinoblastoma diagnosis".JOURNAL OF PSYCHOSOCIAL ONCOLOGY 37..3(2019):319-334
