机构：[1]Department of Pediatrics and Child Health, University of Manitoba, Winnipeg, Canada[2]Department for Thrombosis and Haemostasis Hematology, Skane University Hospital, Scania, Sweden[3]School of Medicine Research Complex 1, University of Colorado, Aurora, CO, USA[4]Wake Forest Baptist University Medical Center, 1 Medical Center Blvd, Winston-Salem, NC, USA[5]Centre de Traitement de l’Hémophilie et Maladies Hémorragiques Constitutionnelles Rares, H?pitaux Universitaires Paris Sud - H?pital Bicêtre, Le Kremlin-Bicêtre Cedex, France[6]Haemophilia Centre Rhine Main – HZRM, Morfelden-Walldorf, Germany[7]The Royal London Hospital Haemophilia Centre, Barts and The London School of Medicine & Dentistry, London, UK[8]Hospital Universitario La Paz - Hematology, Madrid, Spain[9]Department of Hematology, Ege University Children’s Hospital, Izmir, Turkey[10]Angelo Bianchi Bonomi Haemophilia and Thrombosis Centre, University of Milan, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico and University of Milan, Milan, Italy[11]Department Pediatrics, Nara Medical University, Kashihara, Nara, Japan[12]Clinica Colsanitas, Fundación Universitaria Sanitas, Bogota, Colombia[13]Hemophilia Work Group, Hematology-Oncology Center, Beijing Children’s Hospital affiliated to Capital Medical University, Beijing, People’s Republic of China医技科室职能科室临床流行病与循证医学中心血液中心首都医科大学附属北京儿童医院
Objective: To identify ways that provision of hemophilia care can be maximized at the local level, irrespective of available resources or cultural or geographic challenges. Methods: The SHIELD group used its multinational experience to share examples of local initiatives that have been employed to deliver optimal hemophilia care. Results: The examples were reviewed and categorized into four key themes: guidelines and algorithms for delivery of care; collaboration with patients and allied groups for care and education; registries for the monitoring of treatment and outcomes and health care planning and delivery; and opportunities for personalization of care. These themes were then incorporated into a road map for collaborative care in hemophilia that reflected the contribution of best practice. Discussion: Differing healthcare reimbursement systems, budgetary constraints, and geographical and cultural factors make it difficult for any country to fully deliver ideal care for people with hemophilia. The SHIELD approach for collaborative care provides illustrative examples of how four key themes can be used to optimize hemophilia care in any setting.
第一作者机构：[1]Department of Pediatrics and Child Health, University of Manitoba, Winnipeg, Canada[*1]Department of Pediatrics and Child Health, University of Manitoba, 675 McDermot Avenue, Winnipeg, Manitoba, Canada, R3E 0V9
通讯作者：
通讯机构：[1]Department of Pediatrics and Child Health, University of Manitoba, Winnipeg, Canada[*1]Department of Pediatrics and Child Health, University of Manitoba, 675 McDermot Avenue, Winnipeg, Manitoba, Canada, R3E 0V9
推荐引用方式(GB/T 7714)：
Stoffman J.,Andersson N. G.,Branchford B.,et al.Common themes and challenges in hemophilia care: a multinational perspective[J].HEMATOLOGY.2019,24(1):39-48.doi:10.1080/10245332.2018.1505225.
APA：
Stoffman, J.,Andersson, N. G.,Branchford, B.,Bate, K.,D'Oiron, R....&Wu, R..(2019).Common themes and challenges in hemophilia care: a multinational perspective.HEMATOLOGY,24,(1)
MLA：
Stoffman, J.,et al."Common themes and challenges in hemophilia care: a multinational perspective".HEMATOLOGY 24..1(2019):39-48
