机构:[1]Center for Clinical Epidemiology and Evidence-Based Medicine, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, Beijing, China职能科室临床流行病与循证医学中心首都医科大学附属北京儿童医院[2]School of Nursing, Capital Medical University, Beijing, China[3]Beijing Key Laboratory of Pediatric Hematology Oncology, National Key Discipline of Pediatrics (Capital Medical University), Key Laboratory of Major Diseases in Children, Ministry of Education, Hematology Oncology Center, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, Beijing, China医技科室职能科室临床流行病与循证医学中心血液中心首都医科大学附属北京儿童医院
Spiritual support should be offered to all patients and their families regardless of their affiliated status with an organized religion.
To understand nonreligious theistic parents' spirituality and to explore how parents discuss death with their terminally ill children in mainland China.
Qualitative study.
This study was conducted in the hematology oncology center at Beijing Children's Hospital. Participants in this study included 16 bereaved parents.
Participants described themselves as nonreligious but showed a tendency toward a particular religion. Parents sought religious support in the face of the life-threatening conditions that affected their child and regarded the religious belief as an important way to get psychological and spiritual comfort after experiencing the death of their child. Religious support could partially address parents' spiritual needs. Parents' spiritual needs still require other supports such as bereavement services, death education, and family support groups. Some parents stated that it was difficult to find a way to discuss death with their children. For patients who come from nonreligious theistic families, their understanding of death was more complex and may be related to atheism.
Religious support could be an element of spiritual support for nonreligious theistic parents of terminally ill children. Multiple strategies including religious supports and nonreligious supports should be rationally integrated into spiritual support of nonreligious theistic family. Patient's personal belief in death should be assessed before discussing death with them.
基金:
Beijing Municipal Administration of Hospitals Clinical Medicine Development of Special Grant [ZY201404]; Beijing Municipal Administration of Hospital DengFeng Program [DFL20151101]; Beijing Municipal Administration of Hospitals Clinical Medicine Development Special Project [ZYLX201840]
语种:
外文
被引次数:
WOS:
PubmedID:
中科院(CAS)分区:
出版当年[2019]版:
大类|2 区医学
小类|2 区卫生保健与服务2 区医学:内科2 区公共卫生、环境卫生与职业卫生
最新[2025]版:
大类|2 区医学
小类|2 区卫生保健与服务2 区医学:内科2 区公共卫生、环境卫生与职业卫生
JCR分区:
出版当年[2018]版:
Q1MEDICINE, GENERAL & INTERNALQ1HEALTH CARE SCIENCES & SERVICESQ1PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
最新[2024]版:
Q1HEALTH CARE SCIENCES & SERVICESQ1MEDICINE, GENERAL & INTERNALQ1PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
第一作者机构:[1]Center for Clinical Epidemiology and Evidence-Based Medicine, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, Beijing, China
通讯作者:
通讯机构:[1]Center for Clinical Epidemiology and Evidence-Based Medicine, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, Beijing, China[3]Beijing Key Laboratory of Pediatric Hematology Oncology, National Key Discipline of Pediatrics (Capital Medical University), Key Laboratory of Major Diseases in Children, Ministry of Education, Hematology Oncology Center, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, Beijing, China[*1]Center for Clinical Epidemiology and Evidence-Based Medicine, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, 56 South Lishi Road, Beijing 100045, China.[*2]Beijing Key Laboratory of Pediatric Hematology Oncology, National Key Discipline of Pediatrics (Capital Medical University), Key Laboratory of Major Diseases in Children, Ministry of Education, Hematology Oncology Center, Beijing Children’s Hospital, Capital Medical University, National Center for Children’s Health, 56 South Lishi Road, Beijing 100045, China.
推荐引用方式(GB/T 7714):
Siyu Cai,Qiaohong Guo,Yanhui Luo,et al.Spiritual needs and communicating about death in nonreligious theistic families in pediatric palliative care: A qualitative study.[J].PALLIATIVE MEDICINE.2020,269216319896747.doi:10.1177/0269216319896747.
APA:
Siyu Cai,Qiaohong Guo,Yanhui Luo,Yuchen Zhou,Ali Abbas...&Xiaoxia Peng.(2020).Spiritual needs and communicating about death in nonreligious theistic families in pediatric palliative care: A qualitative study..PALLIATIVE MEDICINE,,
MLA:
Siyu Cai,et al."Spiritual needs and communicating about death in nonreligious theistic families in pediatric palliative care: A qualitative study.".PALLIATIVE MEDICINE .(2020):269216319896747